Healthcare Disparities in IBD

Amber Tresca

It's a misconception that inflammatory bowel disease, or IBD, does not affect minorities. This limited series explores how the healthcare system is underserving minority and LGBTQ patients with IBD. Physicians, industry, and legislators need to understand how inequalities affect the IBD community and what needs to be done to improve patient care. read less
Salud y fitnessSalud y fitness
Sociedad y culturaSociedad y cultura

Episodios

Healthcare Disparities in IBD: We Can Do Better
29-03-2021
Healthcare Disparities in IBD: We Can Do Better
Inflammatory bowel disease, or IBD, which includes Crohn's disease, ulcerative colitis, and indeterminate colitis, was previously thought of as a Western disease. IBD was also thought to mainly affect White people and people of Jewish heritage in developed countries like the United States, Canada, Australia, and the UK. However, these demographics are changing, and IBD is now considered a global disease.[1] A harmful and pervasive misconception is that IBD does not affect people of various ethnic and cultural backgrounds. Minority patients are sometimes told that they can't have an IBD because they are of African, Latinx, Native American, or Asian descent. This leads to a delay in diagnosis and care, which for IBD, can result in significant complications that negatively affect every aspect of a person's life. In this limited series, we explore the ways in which the healthcare system is underserving minority and LGBTQ patients who live with an IBD. We cover the spectrum of this issue including the lack of research in minority populations, how cultural ideas around nutrition affect patients, how patients of color can be better supported, and how legislation can play a role. As a long-term IBD patient myself, it's my goal to help physicians, industry, and legislators understand how inequalities affect the IBD community and what they should be doing to improve patient care. Subscribe to Healthcare Disparities in IBD wherever you listen to podcasts. Healthcare Disparities in IBD is brought to you by Amber Tresca, founder of About IBD and co-founder of IBDMoms. [1]Molodecky NA, Soon IS, Rabi DM, et al. Increasing incidence and prevalence of the inflammatory bowel diseases with time, based on systematic review. Gastroenterology. 2012;142:46-e30. doi:10.1053/j.gastro.2011.10.001 Theme music, mix, and sound design is by Cooney Studio.
I Wanted People to Know That They're Not Alone With Fasika Shimeles Teferra, MD
03-05-2021
I Wanted People to Know That They're Not Alone With Fasika Shimeles Teferra, MD
Inflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. IBD is still considered rare in some parts of the world, but incidence is increasing. Fasika Shimeles Teferra, MD of Ethiopia describes her journey to a diagnosis of Crohn’s disease. Being a medical doctor, she has been able to make connections in order to help other IBD patients in her country. Patients face stigma, less than optimal care, and a lack of educational resources for themselves and their friends and family members. Dr Teferra was helping patients as best she could but discovered she needed a bigger platform. She founded a nonprofit, Crohn’s and Colitis Ethiopia, in order to better support Ethiopian patients with IBD. Find Dr Teferra on LinkedIn and Twitter and Crohn’s and Colitis Ethiopia on Facebook and their web site. More about Dr Teferra and IBD in Ethiopia: Interview with Dr Teferra on Lights, Camera, Crohn'sInflammatory bowel disease: an emergent disease among Ethiopian Jews migrating to IsraelInflammatory bowel disease in Africa: what is the current state of knowledge? Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Healthcare Disparities in IBD is written, produced, and directed by Amber Tresca. Theme music, mix, and sound design is by Cooney Studio.
We Have to Invest in the Health Wealth of Our Nation With Brooke Abbott
10-05-2021
We Have to Invest in the Health Wealth of Our Nation With Brooke Abbott
Inflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. Healthcare is political. That's why it's important to push legislators to ensure care is available and accessible to all patients, regardless of their socioeconomic status. Brooke Abbott, of the Crazy Creole Mommy Chronicles and co-founder of IBDMoms helps illustrate the aspects of public policy that are important in achieving equity in healthcare. In this discussion you'll learn how lack of access to educational opportunities affects the healthcare space, how some provisions in the Affordable Care Act help reduce disparities, and why access to technology is an important part of healthcare. Find Brooke Abbott on Twitter (https://twitter.com/CrzyCreoleMommy), Facebook (https://www.facebook.com/crazycreolemommy) and Instagram (https://www.instagram.com/crazycreolemama), and on her blog (https://crazycreolemommy.com). More about public policy issues in healthcare: In Focus: Reducing Racial Disparities in Health Care by Confronting Racism (https://www.commonwealthfund.org/publications/2018/sep/focus-reducing-racial-disparities-health-care-confronting-racism), New Data Show ACA Is Reducing Racial Disparities in Health Coverage (https://www.communitycatalyst.org/blog/new-data-show-aca-is-reducing-racial-disparities-in-health-coverage), Kamala Harris Is Fighting to Protect Black Mothers from Medical Bias (https://www.oprahmag.com/entertainment/a33577853/kamala-harris-black-maternal-health-care-crisis/), Maternal CARE Act, and Black Maternal Health Momnibus Act of 2021 (https://www.congress.gov/bill/117th-congress/house-bill/959 and https://www.congress.gov/bill/117th-congress/senate-bill/346) and New England Journal of Medicine Race and Medicine section (https://www.nejm.org/race-and-medicine). Find Amber J Tresca at AboutIBD.com (http://aboutibd.com), Verywell Health (https://www.verywell.com/ibd-crohns-colitis-4014703), Facebook (https://www.facebook.com/aboutIBD), Twitter (https://twitter.com/aboutIBD), Pinterest (https://www.pinterest.com/aboutibd), and Instagram (https://www.instagram.com/about_IBD). Credits: Healthcare Disparities in IBD (https://aboutibd.com/healthcare-disparities-in-ibd) is written, produced, and directed by Amber Tresca. Theme music, mix, and sound design is by Cooney Studio (http://cooneystudio.com). Transcript: https://aboutibd.com/wp-content/uploads/2021/05/Healthcare-Disparities-in-IBD-Episode-6-Transcript.pdf